The last several months have been hard. I have not felt well. I am not complaining; it is simply honesty. In spite of daily shots of Copaxone and a dozen pills a day, I still seem to be hurting. I still have frequent migraines. In the last six months, I have have three relapses. Although each bout has been temporary, I have lost the ability to speak, see, and walk normally. With each relapse, I have returned to normal. Although when I am tired, my speech sometimes slurs still. Most of the time I am able to function so strangers do not notice that I have MS. I sure hope that continues! I might have health problems and be in a lot of pain, but I don't want to look like a freak. :)
I was not getting good care from my previous Neurologist. I switched to one of the leading MS Neurologists. He specializes in MS. He even treats Montel Williams. I am hoping to get better results from his office. Dr. Foley and his staff are working hard to get my MS under control.
When I had my last infusion of IV SoluMedrol, the infusion nurse started to sign to me. She thought I was deaf. I told her I am not hearing impaired. It was simply my MS making my tongue numb. That was so funny!
Yesterday, I could hardly walk because of the burning sensation in my feet, legs (mainly my right leg) and mid section. Today I seem fine. The burning returned to where it usually resides -- my feet.
Last Saturday, I had a particularly good day. I try to get outside whenever I can, because the more mobile a person with MS is, the more MS seems to let that person stay mobile. I like being able to walk and move, so I get out as the weather and my MS permits.
Saturday, the weather was lovely too. My new boyfriend Zielle and I decided to go to the mountains and have a picnic. We headed up Millcreek canyon and we found a place to BBQ some sausages (and meatless ones for Zielle). Meisje went with us. I manned the fire and grilled. It was a spectacular day. Zielle was super impressed that I knew how to build a fire without lighter fluid. I now know my summers at Girls' Camp did some good.
Today, Meisje went to the Vet. He said he had never seen such a healthy pug. He was surprised at how lean and muscular Meisje is. For once, her hyperactivity paid off. Yay, good job, "Monster-dog"!
The fire that Kristen built.
A ladybug on the wood post at the Millcreek campground.
